BRIEF REPORT
The Relationship Between Consumer Insight and Provider-Consumer Agreement Regarding Consumer’s Quality of Life
Ilanit Hasson-Ohayon • David Roe •
Shlomo Kravetz • Itamar Levy-Frank •
Taly Meir
Received: 3 July 2009 / Accepted: 3 January 2011 / Published online: 14 January 2011
� Springer Science+Business Media, LLC 2011
Abstract This study examined the relationship between
insight and mental health consumers and providers agree-
ment regarding consumers rated quality of life (QoL).
Seventy mental health consumers and their 23 care pro-
viders filled-out parallel questionnaires designed to mea-
sure consumer QoL. Consumers’ insight was also assessed.
For most QoL domains, agreement between consumers and
providers was higher for persons with high insight. For the
Psychological well being dimension a negative correlation
was uncovered for persons with low insight indicating
disagreement between consumer and provider. These
findings are discussed within the context of the literature on
insight and agreement between consumer and provider as
related to the therapeutic alliance.
Keywords Insight � Quality of life �Severe mental illness � Agreement
Introduction
Past research revealed frequent disagreement between
mental health consumers and providers in a broad range of
areas (Roe et al. 2002), including consumer quality of life
(QoL) (Sainfort et al. 1996; Kravetz et al. 2002; Lasalvia
and Ruggeri 2007). Such disagreement was found to be
related to non adherence and lower satisfaction with
treatment (Mitchel et al. 1983; Perrault et al. 1996). These
findings are consistent with first person accounts of persons
with SMI (Hatfield and Lefley 1993; Deegan 2004, 2005).
The limited agreement between consumers and provid-
ers perspectives on consumers’ QoL is important due to its
putative relevance for the quality of the therapeutic rela-
tionship which is an important component of effective
mental health care (Priebe et al. 2005, 2010; Couture et al.
2006; Lasalvia and Ruggeri 2007). A widely accepted
definition of the therapeutic alliance characterizes it in
terms of three core dimensions: a positive emotional rela-
tionship, agreement with regard to tasks, and consensus
with regard to the goals of therapy (Bordin 1979; Horvath
and Bedi 2002). This conceptualization of the therapeutic
alliance has been the most heuristically rich and influential
model of the effective bond in psychotherapy (Friedlander
et al. 2006). The term therapeutic alliance is also used in
psychiatric rehabilitation to describe the quality of the
relationship between various mental health consumers and
providers (see for example: Tam and Law 2007; Solomon
et al. 1995).
QoL has been used as a framework for formulating
consumer and provider goals in psychiatric rehabilitation
(Coorigan et al. 2008). Thus, agreement between them on
goals and QoL are likely to have a positive impact on the
therapeutic alliance which in turn improves treatment
outcome. Due to the major role that the agreement between
consumer and provider play in treatment, uncovering the
factors that influence this agreement is important.
The present study examined the relation between insight
into illness and consumer and provider agreement as to the
consumer’s QoL. Lack of insight among persons with a
diagnosis of a schizophrenia spectrum disorder has found
to be common with rates ranging between 50 and 80%
(Amador et al. 1991, 1994; Lincoln et al. 2007).
I. Hasson-Ohayon (&) � S. Kravetz � I. Levy-Frank � T. Meir
Department of Psychology, Bar-Ilan University,
52900 Ramat-Gan, Israel
e-mail: [email protected]
D. Roe
Department of Community Mental Health,
University of Haifa, Haifa, Israel
123
Community Ment Health J (2011) 47:607–612
DOI 10.1007/s10597-011-9380-2
McCabe and Priebe (2004) discussed the importance of
insight as it relates to the agreement between therapist and
client and the therapeutic alliance. Langdon and Ward
(2008) provide evidence for a relation between insight and
the individual’s metacognitive ability to see one’s self as
others perceive her or him. They interpret these findings as
implying that this metacognitive ability may lead to insight
because it contributes to the capacity to reflect upon one’s
own mental health from the perspective of others.
The present study examined whether insight into illness
moderates consumer and provider agreement as to clients
QoL in a number of life domains. On the basis of the above
literature review, it specifically tested the hypothesis that
more agreement will be found for consumers with high
insight than for consumers with low insight.
Method
Research Setting
This study was carried-out in psychiatric rehabilitation
settings located in the community in central Israel. Each
setting employs multi-professional staffs that include social
workers, occupational therapists, psychologists and reha-
bilitation counselors.
Research Participants
Seventy persons diagnosed with a SMI spectrum disorder
participated in this study (age: M = 41.8, SD = 12.73;
number of previous hospitalizations: M = 6.12,
SD = 4.88). Inclusion criteria were fluency in Hebrew and
sufficient competence to provide informed consent. Out of
83 persons that were initially approached and asked to
participate in the study 13 refused or could not provide
informed consent. 87% of the participants were diagnosed
with schizophrenia spectrum disorders while the others had
affective disorders, obsessive compulsive disorders and
severe personality disorders. 47% of the participants lived
in hostels, 77% worked in sheltered work and 71% are
single.
Twenty-three therapists (social workers, occupational
therapists, psychologists, nurses and rehabilitation work-
ers) participated in this study. These providers were
members of the professional staffs of the above mentioned
rehabilitation settings. In general, the providers met their
clients on a weekly basis. Duration of acquaintance with
consumers was less than six months for 57.1% of the
therapists and more than two years for 25.7%. Natures of
acquaintance were personal meetings, group meetings or
engaging in various social activities on a regular basis.
Instruments
QoL was assessed by the Hebrew version (Kravetz et al.
2002) of the Wisconsin Quality of life Questionnaire-
Mental Health (Becker et al. 1993). This questionnaire
consists of 58 self-report items which reflect QoL in
occupational activities, psychological well-being, psychi-
atric symptoms, physical health, social relations, financial
status, and activities of daily living (ADL). Previous
studies showed this scale to be valid and reliable (Becker
et al. 1993; Van Nieuwenhuizen et al. 1997; Kravetz et al.
2002). Cronbach’s alpha in the current study was .64 for
the total score.
Quality of Life-Therapist Questionnaire
The structure of the therapist version of the Wisconsin
Quality of Life parallels that of the client’s version.
Cronbach’s alpha in the current study was .70 for the total
score.
Insight into Serious Mental Illness
Insight was assessed using the Schedule for Assessment of
Insight-Expanded version (SAI-E) (Kemp and David 1995,
1997). This scale is made-up of three dimensions of
insight. These dimensions are awareness of the illness, the
capacity to re-label psychotic experiences as abnormal and
awareness of symptoms, and treatment compliance. Higher
scores on the SAI-E items indicate higher levels of insight.
This scale was found to be valid and reliable (Sanz et al.
1998; Chopra 2004). In the present study, the Cronbach
alpha ranged from .64 to .83 for the different dimensions.
Procedure
After the study was approved by a hospital based ethics
committee, the staffs of the rehabilitation centers agreed to
participate in the study and selected the potential research
participants. All instruments were self report measures and
were administrated individually by the same research
assistant (a psychologist) in one meeting with each
participant.
Statistical Method
Pearson product moment correlations were calculated
between consumer and provider evaluation of the con-
sumer’s QoL for all of the QoL subscales. These correla-
tions were calculated for the total sample of participants
and then for participants with high (median and above) and
low insight (below the median). In addition, one way
MANOVAs were carried out with level of insight [high
608 Community Ment Health J (2011) 47:607–612
123
(median and above) and low insight (below the median)] as
the independent variable and the QoL measures as the
dependent variables.
Results
Pearson product moment correlations between the various
measures of insight and client QoL as reported by the
providers and by the consumers showed that the most
consistent finding is the statistically significant negative
correlations between the awareness of the illness dimen-
sion and six of the seven consumer self reported QoL
domains. Thus, consumer with high insight reported less
QoL and consumer with low insight reported more. How-
ever, for client QoL as reported by the providers, statisti-
cally significant positive correlations appeared between
several measures of insight and a number of the QoL
subscales. When re-labeling was the insight dimension, this
positive correlation appeared with regard to the domain of
symptom QoL. However, when compliance was the insight
dimension, this statistically significant correlation appeared
for six of the seven provider reported QoL domains. Thus,
from the provider’ point of view, consumer with high
insight experienced more QoL than consumer with low
insight, especially when insight was defined as adherence.
In general, few relations were found between consumer
insight and provider ratings of client QoL. Only with
regard to the symptom dimension of QoL were the rela-
tions between QoL and insight negative for the consumer
QoL ratings and positive for the provider QoL ratings.
A MANOVA analysis was used to assess whether sta-
tistically significant differences exist in levels of QoL as
reported by the consumer or by the provider between con-
sumers with high and low insight. The consumers were
divided according to their level of insight by the median
(Md) into high and low insight on four measures of insight;
awareness of illness (Md = 4.00), re-labeling (Md = 5.25),
compliance (Md = 5.00) and total insight score
(Md = 11.00). The four measures of insight were the
independent variables and QoL from the consumer’s point
of view and QoL from the provider’s point of view were the
dependent variables.
The analysis uncovered statistically significant differ-
ences only for QoL, as reported by the consumer, for the
total insight score (F(13,56) = 7.62, P \ .01) and for re-
labeling dimension of insight (F(13,56) = 4.3, P \ .05).
Thus, consumers with low overall insight and low re-
labeling insight reported more QoL (M = 5.07, 5.08
respectfully) than consumers with high overall insight and
high re-labeling insight (M = 4.42, 4.44 respectfully). No
other statistically significant differences were found. Thus,
the MANOVA replicated the tendency of insight into the
illness to correlate negatively with consumer reported QoL.
More pervasive relations between these variables and the
positive relation between insight into the illness and pro-
viders reported QoL were not uncovered by the MANOVA
probably because of the loses of information incurred by
the transformation of a continuous variable to a nominal
variable on the basis of the median.
Pearson product moment correlations between consumer
and provider reports of the consumer’s QoL in each of the
seven QoL domains were calculated for the total sample as
well as separately for consumers with high and low insight
for all four measures of insight (awareness of illness, re-
labeling, compliance, total insight score). From these
analyses it is evident that for the whole consumer sample,
positive correlations between consumers and providers on
QoL were found to be statistically significant only for the
economic and ADL QoL domains and for the total QoL
score. Thus, for five of the seven QoL domains, agreement
was not found between consumers and providers with
regard to consumer QoL. However, when the consumers
were divided according to their level of insight by the
median (high and low), additional statistically significant
correlations were uncovered.
For persons with high insight, significant positive cor-
relations between consumers and providers reports of the
consumer QoL were found for four of the QoL domains
and for the total QoL scale. These correlations emerged for
the ADL domain (for all three insight dimensions and the
total insight score: r = .46–.56), for the occupational
domain (for the awareness of illness insight dimension and
for the compliance insight dimension: r = .31–.33), for the
symptoms (for the total insight score: r = .34), for the
economic domain (for the compliance insight dimension:
.36), and for the total QoL score (for the awareness of
illness dimension, the compliance dimension, and the total
insight score: r = .37–.53). For the ADL and symptom
domains and for the total QoL scores, no correlations
appeared for the consumers with low insight. However, for
the occupational and economic domains, statistically sig-
nificant positive correlations between the consumers and
providers were also found for consumers who were char-
acterized as exhibiting low insight. For the occupational
domain, this correlation was found only for the awareness
of insight dimension whereas (r = .34), for the economic
QoL domain, it was found for the total insight score, re-
labeling and compliance dimensions (r = .28–.35). Statis-
tically significant negative correlations between provider
and consumer reports on QoL were found for the psycho-
logical well-being domain for all three dimensions of
insight (r = -.31 to -.47). Thus, there was a negative
relation between the consumers’ and providers’ reports of
the psychological well-being of persons who exhibit low
insight into their SMI. Apparently, what persons with low
Community Ment Health J (2011) 47:607–612 609
123
insight view as high psychological well-being is viewed by
their providers as low psychological well being.
Discussion
Consistent with past research which revealed discrepancies
between the perceptions of mental health consumers and
providers (Perrault et al. 1996; Roe et al. 2001, 2002;
Sainfort et al. 1996; Kravetz et al. 2002), the current study
found a gap in the evaluation of consumers QoL. For the
total sample of research participants, agreement was found
only for the economic and ADL QoL domains. These
findings suggest that agreement might be more easily
attained in relatively objective QoL domains.
Interestingly, agreement between consumers and pro-
viders was related to consumer’s level of insight. For most
domains of QoL, higher agreement between consumer and
provider was found for consumers with higher levels of
insight than for persons with lower levels of insight. In the
occupation and economy QoL domains, agreement
between consumer and provider was also found for con-
sumers with low insight. In addition, for persons with low
insight, significant disagreement between consumers and
providers was found in the psychological well-being QoL
domain. These correlations in the psychological well-being
QoL domain were the only negative correlations that were
found between the consumers’ and providers’ perceptions
of client QoL.
Accounts of this study’s major finding might differ in
accordance with different explanations regarding the eti-
ology of lack of insight. If lack of insight is attributed to the
illness itself and related to difficulty in monitoring reality,
one would expect that persons with high insight would
better monitor reality and, thus achieve a more accurate
evaluation of their QoL, which, in turn, would be more
likely to be in accord with their clinician’s evaluation.
Support for this explanation stems from research on the
negative association between insight and illness severity
(Cuesta and Peralta 1994; Schwartz 1998) and research
suggesting that lack of insight might interfere with accurate
reports of QoL (Doyle et al. 1999). This explanation,
however, is not supported by our finding that in a number
of QoL domains, consumer–provider agreement was high
among consumers with low insight. This finding may be
better understood when viewing the etiology of lack of
insight as a defense against the stigmatic impact of the
mental illness label. Roe and Kravetz (2003) distinguish
between descriptive and narrative insight and suggested
that persons with SMI may develop coherent accounts of
their mental illness that provide them with meaning in life
and, at the same time, enable them to avoid such conse-
quences of the mental illness label as stigma. This
explanation is consistent with our finding of a correlation
between low insight and agreement in few QoL domains.
According to the above explanation, the coherence of a
person’s illness narrative rather then its specific content
may also facilitate provider empathy with regard to that
client’s QoL. Providers might form better rapport with
clients whose narratives are coherent than with clients
whose narratives lack coherence and invest more in their
work with these clients. This interpretation is consistent
with studies showing that differences between consumer
and provider perceptions of the consumer’s condition and
QoL are negatively related to consumer satisfaction with
treatment (Perrault et al. 1996; Sainfort et al. 1996; Roe
et al. 2001). These differences may be the result of the
provider’s failure to take the client’s perspective into
consideration due to the apparent incoherence of some of
the clients’ narratives.
Viewing clinical psychiatric insight as a narrative that
serves to facilitate effective therapeutic communication as
well as a professional and scientific description of a state of
affairs would be in keeping with narrative approaches to
psychotherapy (Angus and McLeod 2004). It is also in line
with research on narratives of persons with SMI that
showed a positive relation between the coherence of per-
sonal narratives and insight (Lysaker et al. 2002).
The study’s findings, together with previous research,
suggest that agreement between consumers and providers
of care is important but difficult to achieve. This conclu-
sion has a number of important implications. If the dis-
agreement between them is due, in part, to lack of insight
and if lack of insight is a consequence of such cognitive
impairments such as the limited empathic and metacogni-
tive ability to adopt the perspective of others (Langdon and
Ward 2008; Lee 2006), strategies that have been found to
help clients improve this ability (see review Hasson-Oha-
yon et al. 2010) may help clients increase their insight and
improve consumer–provider agreement.
While considering this study’s results one should note
the following limitations. First, both the provider and the
consumer samples were heterogeneous with regard to
consumer diagnoses, provider profession and duration of
relationship between them. Although research suggests that
consumers tend to be consistent in their rating of the
therapeutic alliance at different stages of treatment (Martin
et al. 2000), it might be that the relatively low duration of
relationship and that few of these relationship included
tutor or social guide influence agreement. Second, this
study is cross sectional and results varied depended on QoL
specific domains. Finally, future research that will address
these limitations and will include a narrative evaluation of
insight might have contributed to the clarification of the
complex manner in which insight and consumer–provider
agreement affect each other.
610 Community Ment Health J (2011) 47:607–612
123
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